Living With Hyperparathyroidism: Real Patient Stories and Outcomes

Hyperparathyroidism is a condition many people in India have never heard of—until they’re diagnosed with it. It’s a disorder in which the parathyroid glands, located near the thyroid, produce too much parathyroid hormone (PTH). This hormone regulates calcium levels in the blood, and when it goes out of balance, it can silently affect your bones, kidneys, and overall well-being.

In this blog, we go look at what it’s really like to live with hyperparathyroidism. We share patient experiences from across India, what treatment looks like, and how people manage life after diagnosis.

What is hyperparathyroidism?

Hyperparathyroidism is a condition where one or more of the parathyroid glands in your neck become overactive and release too much parathyroid hormone (PTH). These small glands are located behind the thyroid but serve a different function. PTH helps regulate calcium levels in the blood and bones.

When there is too much PTH, it causes calcium to be pulled from the bones into the bloodstream. Over time, this can weaken bones, lead to kidney stones, and affect how your muscles and nerves function. There are three main types: primary, secondary, and tertiary hyperparathyroidism, depending on the cause and underlying health issues.

The condition is more common in women over 50, but it can affect anyone. Many people don’t realize they have it until routine blood tests show high calcium levels. Because it often develops silently, early detection and treatment are important for preventing long-term damage.

What symptoms do patients usually notice first?

Most people with hyperparathyroidism don’t feel sick right away. The symptoms start off subtle and can be mistaken for other health issues.

Common early signs include:

• Mild bone or joint pain

• Frequent urination or kidney stones

• Depression or mood swings

• Fatigue and weakness

• Trouble focusing or memory issues

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How is hyperparathyroidism diagnosed in India?

Diagnosis typically starts with routine blood work. If a doctor finds high calcium levels, they may order further tests to check parathyroid hormone (PTH) levels. If PTH is also high, hyperparathyroidism is suspected.

Tests commonly used:

• Serum calcium and PTH levels

• Vitamin D levels

• Bone mineral density test

• Kidney function test

• Ultrasound or Sestamibi scan of the neck

  
  

What are the treatments available?

Treatment depends on the type and severity of hyperparathyroidism. Some people with mild cases and no symptoms may only need regular monitoring. However, others may require medication or even surgery.

When surgery is not recommended or feasible, doctors may prescribe medications that reduce PTH levels. One such option is PTH 30mg Tablet, commonly used to manage hormone levels and prevent calcium loss in certain patients with advanced or recurring cases.

Another medication that is commonly used in India is Cinacalcet, especially in secondary hyperparathyroidism caused by chronic kidney disease. It works by mimicking calcium in the body and helps reduce PTH production.

Treatment approaches include:

• Regular monitoring for mild cases

• Calcium and vitamin D supplements (if needed)

• Medications to lower PTH

• Parathyroid surgery (parathyroidectomy)

  
  

Can lifestyle and diet help manage the condition?

Yes, lifestyle plays a supporting role in managing hyperparathyroidism. While medication or surgery addresses the root cause, daily habits can ease symptoms and prevent complications.

Tips for managing hyperparathyroidism:

• Stay well hydrated: It helps flush out excess calcium through urine

• Limit calcium supplements: Only take if prescribed

• Avoid high-sodium foods: Salt increases calcium loss in urine

• Weight-bearing exercise: Walking, yoga, or light strength training helps keep bones strong

• Routine testing: Regular blood and urine tests are essential

  
  

What’s life like after diagnosis?

The good news is that with proper care, most people go on to live full, healthy lives after treatment. But the journey is not always easy.

Patients on long-term medication also report improvements once PTH levels are controlled. Mental clarity, energy levels, and bone health gradually improve. However, many say emotional support from family and regular follow-ups with their doctors made all the difference. 

Are there any myths about hyperparathyroidism?

There are many misconceptions about the condition in India, partly due to a lack of awareness. One major myth is that hyperparathyroidism is related to the thyroid gland, which is not true. Although the parathyroid glands are located near the thyroid, they function completely differently.

Another myth is that bone or kidney problems in older adults are just part of aging. In fact, they may be warning signs of hormonal imbalance.

As part of awareness efforts, some clinics are now educating patients about unknown facts about thyroid and parathyroid health, especially for those with unexplained symptoms like fatigue or kidney stones.

Key Takeaways

Due to the moderate nature of its symptoms, which include fatigue, bone pain, and kidney stones, hyperparathyroidism frequently goes undiagnosed.  Serious long-term problems can be avoided with routine blood tests for early detection.  Depending on the needs of each patient, treatment options may include prescription medicines, surgery, and lifestyle modifications. 

Patient experiences in the real world demonstrate that individuals can effectively control their symptoms and lead satisfying lives with the correct care.  Recuperation and long-term health depend on frequent checkups and ongoing medical assistance.  The low level of awareness of this issue emphasises the need for early identification and education in order to improve results for those who are dealing with this hormonal imbalance.